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[Download] "Burden of Care and Childhood Cancer: Experiences of Parents in an Asian Context." by Health and Social Work # eBook PDF Kindle ePub Free

Burden of Care and Childhood Cancer: Experiences of Parents in an Asian Context.

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eBook details

  • Title: Burden of Care and Childhood Cancer: Experiences of Parents in an Asian Context.
  • Author : Health and Social Work
  • Release Date : January 01, 2003
  • Genre: Health & Fitness,Books,Health, Mind & Body,
  • Pages : * pages
  • Size : 222 KB

Description

This article has two objectives. The first is to share findings on the psychosocial needs of Asian parents arising from a diagnosis of cancer in their children. The second is to relate the findings to the concept of burden of care in light of the propensity for Asian families to receive help from the informal network in a family crisis (Ow & Katz, 1999). Childhood cancer is a life-threatening and traumatic event that affects the patient as well as the entire family. It interferes with daily functioning and disrupts plans for the future. Family members are confronted with a number of new challenges, including giving emotional support to the sick child, making arrangements for hospital stays and appointments, and helping their other children cope with the demands of an ill sibling. Demands are both internal to the family (for example, new child care arrangements) and external (for example, meeting the financial cost of treatment) (Sawyer, Streiner, Antoniou, Toogood, & Rice, 1997; Sloper, 1996; Wochna, 1997). Earlier empirical research documented a wide range of effects on parents. Depending on the point of assessment, parents reported different degrees of psychological distress and needs. Northam (1997) described the experience as a process similar to mourning when parents grieve over the likelihood of losing their children. Sawyer and colleagues (1997) reported that during the period immediately after the diagnosis, parents tend to experience a high level of strain, anxiety, and sleep loss, but the distress declines and stabilizes over the first year. Other emotional experiences of parents include fearfulness, desperation, and guilt (Martinson et al., 1995).


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